In what I guess was the summer of '48, my mother caught polio, perhaps
from me or my brother. We had been vacationing in the Pocono mountains,
and there is one last movie of Molly with Bill and I at the edge of a swimming
pool. It was soon evident that Molly, who was rarely ill, was
seriously so and then that she had polio. Our good good friend, Dr.
Adler, was Dean of the UPenn medical school; he cleared a ward, so that
Molly, highly contagious, could be hospitalized. Molly never spoke
to me of that time, except to say, once, that the pain of polio was having
a tooth pulled....all over your body. When the disease had run its
course, she was left with the ability to move her head and very weak abilities
in her arms and hands; she went for rehabilitation at Warm Springs, Georgia
(where FDR had been treated). She spent the rest of her life in a
wheelchair or bed. With her arms supported by ball-bearing glides,
she could feed herself, dial a phone or turn the pages of a book in a rack;
she could lift nothing heavier than a fork with food on it (and certainly
not her arms themselves or herself).
I never once heard her complain.
This winter, my step-mother Biddy came across some old letters from Philadelphia. In them was this letter of Molly's, written a year after the disease had struck. What spirit she had; she remains my exemplar of courage.
Last year at this time. I was up and about on my two
busy feet eagerly beginning our last fall and winter in Philadelphia.
This year, I am up and about also---but in a wheel chair and counting myself
fortunate to be so. Then we had just completed a wonderful and adventurous
summer--driving West, working in the Democratic national convention, weekending
with friends at the shore---and were thinking how best we could savour
and enjoy this final year of my husband's fellowship in the City of Brotherly
Love and the host of beloved friends we had made there. Now we are
at the end of another busy summer--having gotten over the first, and we
hope biggest, hump of adjusting (an ugly word, but polio is full of it)
to life in a world for unhandicapped persons. We justly count ourselves
experienced, if not sophisticated, in the matter of servants; and now we
are equipped to run our household with other hand at my direction, and
we are eager and curious to see what time is going to bring.
The first warning, although we didn't recognize it
as such, came one night as we were getting to bed, and I voiced something
that had been with me all day, but which I'd been to busy to note consciously:
"I have a funny pain high in my back", I said, "It doesn't hurt much but
it just doesn't go away." That was on a Tuesday night and the following
Sunday late, I was in the hospital too agonized to care to much when my
husband said goodnight and back home to two neglected little waifs we had
left behind crying to see their mother carried out. The next morning
before daylight, I was in a respirator, horrid and blessed monster, and
the ensuing week I know nothing of, which is all right by me. I remember
only snatches now and then of a frantically worried husband standing over
me, and my thinking how silly he was to take it so seriously, nothing ever
happened to me. I was LUCKY. And so I was. Our two sons
never contracted the disease---or if they did, it was that nice mild form
that passes without notice. Neither did Wy get it, and he has been
busy all this year producing substitutes for my missing muscles.
We had two loving families to help us, to care for our two sons and to
get ready for us a house in which to resume our life as a family.
Everything about polio is long and slow, excepting
the speed with which it stops your stride. It takes a long long time
to believe it. For two months I never looked at anything but ceilings
until I felt sure I had memorized the top of every hall and corridor, elevator,
treatment room and a good many just plain rooms in the hospital.
I recall in the respirator thinking how I would be back at home by Thanksgiving
to bake a blackberry pie from the canned wild blackberries that our oldest
boy had picked on the hill above his grandmother's house while we were
being giddy and irresponsible somewhere out west. As it turned out,
by Thanksgiving I was just beginning to feel comfortable enough to bear
the pain of being turned on my stomach. And by Thanksgiving too,
I was increasing the scope of reality to absorb the possible fact that
I might not walk again. It took me longer to face the fact that I
wouldn't be able to do all I might wish with my arms. By then, though,
I had learned to appreciate the compensation of a good trunk [torso], and
breathing muscles returned to normal.
I have not had any great spiritual difficulties to
solve, and although I can't deny a normal amount of emotional trouble,
there has been very little that we have been unable to work out in the
family.